It sure has been a long week. Kaden is still on oxygen intermittently. His tummy isn't working quite right and we're pretty sure he has a secondary infection. Lot's of wet coughing and suctioning. The amazing thing is.... he's dancing around tonight singing "welcome to the Space Jam". He is wearing a white tank top and has informed us that he "feels" like a real basketball player. He followed that up by saying "oh, wait a minute, I am a basketball player Mommy. Just ask Daddy and Evan." He amazes me.
I'd like to share some great news. We've been very blessed this week in several ways. With the support of a wonderful family I met, I just might be able to start networking and finally creating the advocacy and awareness support group for families like ours! Please friends, spread awareness about autonomic dysfunction. You never know who may need to hear about it.
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