These Precious Things

So I suppose it's time for another update....Since our last update, Kaden's been in and out of an "Autonomic Storm". For over a week he decided he simply wasn't going to eat. We really had to encourage him to eat. He had another GI bleed 2 weeks ago. We're back down to 32 lbs. ;(
He had an Upper GI Series done, which was on the cusp of normal. The tummy doctor is investigating mitochondrial diseases and Crohns disease. For some reason, Kaden isn't absorbing nutrition. He's started talking in his sleep a lot, and is having more episodes of apnea. Still using oxygen off and on.
We met his new neurologist. Boy...that was interesting. He is baffled by Kaden as well. He increased one of his medications to help with all of the foot and knee pain he's been experiencing. we're to follow up with him via phone this week.

On a good note, Kaden made his first official friend here in Myrtle Beach. He's still not sure how to play nicely, but thank goodness his new friend is very patient with Kaden.
Also, Brandon has done a phenomenal job encouraging play time and bonding with his little brother. Kaden has now lost 2 teeth. Very exciting!

I know this is a short update, but our hearts are heavy waiting for more information about his diagnoses.

We are still dealing with strange color changes. He is still functioning quite well, but is really unstable at times. Please keep him in your prayers.

We love you son! Keep up the strength that we know you have. Continue to grow and improve! May the good Lord continue to embrace you in his arms and give you strength. 

Jeremiah 29:11- "For I know the plans for you declared the Lord", "Plans to prosper you and not to harm you, plans to give you hope and a future."