Another Pneumonia- Surgery scheduled

Posted Jul 20, 2011 11:09am

So folks,After spending 10 hours driving in the last 2 days, 12 hours at the hospital going to this place, that place etc.....Kaden is at home....and I'm watching him like a hawk. There's nothing like a sleep deprived mother watching every move her son makes to ensure that he's breathing, and stable.Kaden started with aspirating on food 3 nights ago. The following night he had a fever, and needed his O2 increased. We already saw the surgeon just the day before in Charleston to schedule his diagnostic surgery for August 12. We will schedule his surgery for repair of the cleft after the diagnostic surgery is completed and the specialists can review their findings.So, anyway..... we went back to Charleston yesterday to see Kaden's new pediatrician to establish a relationship with a team of doctors there. Sure enough, he has yet another pneumonia. His new doctor, Dr. Day, is probably 5 years younger than me, cute as a button and eager to learn. She is humble and very attentive. I was very pleased with her and look forward to working with her to keep Kaden healthy.They allowed me to bring him home and felt like admission was not necessary at this point. Should he decline anymore however, he will be admitted to the hospital for I.V. antibiotics. We have him on Omnicef and that drug typically does the trick in fighting the pneumonias. This one makes a running total of "drum roll please"....22 aspiration pneumonias. He continues to lose weight over the last 10 days, so I'm trying to increase his time on the pump for more calories. We shall see if that works.He needs prayer, good thoughts, and support right now. We have some very scary procedures coming up and the last thing we needed was airway compromise right before they're getting ready to operate on his airway. Go figure. So, that's that. I will do my best to keep you all informed.Love and Blessings to all, Julie AKA Mom