Finally got some news

Posted Jan 24, 2011 3:07pm

Well, we saw the doc today. Kaden is in total parasympathetic failure for sure. No mistake there. We will start using a new drug to help wake up the part of his brain that's not working anymore. He's wearing a holter monitor to pick up his cardiac activity. He has venous pooling (which sucks) and sign of stress on his heart...(not a big suprise). Dr. Abdallah has asked me to write a narrative of Kaden's life. Apparently, he feels it's important to write about him to inform and teach other parents about this very severe, very rare disease. Well, heres to treatment! Let's all hope and pray this works! Love to all!