A Season of Patience....

Posted May 13, 2011 5:17pm

So, somebody once told me that life as a parent requires great patience. I must say that I agree and have learned so much about myself on this journey. There really isn't much to say about Kaden that you all don't already know. There are still pros and cons to this situation. Of course it goes without saying that the life of our son is what's most important and it is full of joy. He continues to thrive in his own little " Kaden" way. Of all the things we celebrate, most importantly he FEELS good. He rarely complains of pain. His body temperature is stabilizing. His pupils are starting to constrict more and more. He LAUGHS.... a lot. He's doing really well going potty. There are still several struggles but I don't want to focus on any of them. We've had enough negativity to last us a lifetime.
His color is still pretty yucky due to his heart not perfusing well and we still have a long way to go. We still don't have a definitive answer about anything at this point.
Through faith alone- I'm ok with that. I have to be, and so does Brian. We are a team. It is our job to please God and be completely dedicated to the well being of our son using His guidance, and making decisions that are pleasing to Him.
Brian is still flying back and forth, and so are the kiddos. Brian's dedication to all of us is truly the epitome of what a father and husband should be like. He is my rock. The older kids are happy to see their little brother and seem to be handling all of the transition in their lives. They are resilient. Mom is still here with me. She is still Kaden's nurse and an excellent one at that. She is so selfless and loving, and full of grace. We are here for the final stretch of treatment. The doctors are considering adding in another medication and are encouraging moving forward with a heart catheter procedure. We will just have to wait and see. That is all I can handle for now. One day at a time.

We all just have to be patient at this point. Nobody knows were we will end up.
One thing is for sure though.....we miss home.

Love to all, and please, hug your little ones....you never know what you have until it's almost gone. Trust me. I've been there. We thank God, friends and family every day for helping give Kaden a chance, and it seems to be working....slowly, but surely.