Wild ride....
Posted Aug 8, 2010 9:06am
I have been staring at my computer screen for 15 minutes unsure of what to write. I sit here questioning what information people are longing to hear and am unaware of the details that our loved one's want to know. I guess you could say that during this season of our lives our hearts are lost.
My faith remains strong, and I find great comfort in prayer. God is awesome, God is good. He has a plan and many words for me to read and absorb in order for me to learn and share His word on our journey.
I would like to take a moment to thank Rocky Mountain Calvary for their very generous donation to help Kaden get to Virginia. It is so amazing that the pastor and his staff so selflessly made a donation to a little boy that they don't even know...and for this we are grateful.
We have received other donations as well and are almost 1/2 way to our goal. We will continue to trust in our Father that He will get us right where we need to be.
As for our beautiful little son....This week has been a roller coaster of events. I'm not even sure where to start. Kaden's little heart stopped beating 3 times Tuesday morning for very brief periods and it started right back up again. He continues to have apnea, hypopnea, and significant blood pressure irregularities, but he remains strong. Sometimes I think he was always meant to be in battle, and I feel this way because in my eyes he's a valiant warrior. He is so good at compensating and continues to fill our home with laughter.
He's been quite hyper this week due to some necessary medicine changes and very hard to keep calm. Perhaps his behaviors are a typical sign of a typical 3 year old. One of his primary nurses and I are trying to figure out if the changes in his heart rate are a "good" weird or a "bad" weird. Either way, his heart rate is weird.
We saw the Dr. on Tuesday and she wrote a letter of medical necessity for Kaden to travel to VA. She actually stated that his condition is outside of her and 23 other doctors' knowledge base and that he must go see a specialist. There is simply nothing else we can do. We are keeping a close eye on his kidneys and checking his blood pressure frequently. We will continue to monitor him closely until we know which direction to turn. Until then, we will enjoy Kaden and pray for enough time with him to save his healthy organs from further insult and get him to a doctor that can really help.
Love To All, Julie
My faith remains strong, and I find great comfort in prayer. God is awesome, God is good. He has a plan and many words for me to read and absorb in order for me to learn and share His word on our journey.
I would like to take a moment to thank Rocky Mountain Calvary for their very generous donation to help Kaden get to Virginia. It is so amazing that the pastor and his staff so selflessly made a donation to a little boy that they don't even know...and for this we are grateful.
We have received other donations as well and are almost 1/2 way to our goal. We will continue to trust in our Father that He will get us right where we need to be.
As for our beautiful little son....This week has been a roller coaster of events. I'm not even sure where to start. Kaden's little heart stopped beating 3 times Tuesday morning for very brief periods and it started right back up again. He continues to have apnea, hypopnea, and significant blood pressure irregularities, but he remains strong. Sometimes I think he was always meant to be in battle, and I feel this way because in my eyes he's a valiant warrior. He is so good at compensating and continues to fill our home with laughter.
He's been quite hyper this week due to some necessary medicine changes and very hard to keep calm. Perhaps his behaviors are a typical sign of a typical 3 year old. One of his primary nurses and I are trying to figure out if the changes in his heart rate are a "good" weird or a "bad" weird. Either way, his heart rate is weird.
We saw the Dr. on Tuesday and she wrote a letter of medical necessity for Kaden to travel to VA. She actually stated that his condition is outside of her and 23 other doctors' knowledge base and that he must go see a specialist. There is simply nothing else we can do. We are keeping a close eye on his kidneys and checking his blood pressure frequently. We will continue to monitor him closely until we know which direction to turn. Until then, we will enjoy Kaden and pray for enough time with him to save his healthy organs from further insult and get him to a doctor that can really help.
Love To All, Julie
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