Digging even deeper

Now we are back to real time blogging. I'm officially "Blogging" now. I certainly hope this site works better than the other one did. For those of you that are new to this site, you can read the history of our journey. Today is Thursday. My mom came back yesterday after a 6 week trip to Colorado to see my dad and the rest of our family. I've been on 24/7 nursing duty with Kaden....but it really wasn't that bad. Brian is working a ton of hours and is so tired. We are all just tired. We had a visit from Mary, Brandon's mom, and she brought Kylee and Evan back from Colorado with her on the plane. They spent the summer with their daddy in Colorado. However, they will be living here for school and Brandon will live in Colorado for school. We will trade off time with the kiddos throughout the school year as well as the summer.

As for Kaden...we're in the process of coordinating a new team of specialists. We went to MUSC this morning and now have a new pulmonologist (lung doctor). Apparently our new team of physicians have all been talking with Dr. Abdallah, which is a good thing.  Unfortunately it is a possibility that the treatment has stopped helping Kaden. So....now what? We are set up to see the cardiologist and G.I. doctors on Monday. Kaden will be admitted to MUSC for a few days. There are some concerns. He's starting to revert to his old problems again. The doctors are being safe and are trying to get a "baseline" of Kaden before they do any surgeries. Hence, surgery has been postponed. We are considering a g-j tube now (a new kind of feeding button to help with nutrition). Kaden is failing to thrive again. No need for negative excitement....hopefully this too shall pass. Words are not coming easily today. I will say this however; time with my children is absolutely priceless.