Not sure how to feel

Posted May 19, 2010 9:00pm

So, this is what I'm trying to figure out....Is it more normal to feel agitated when tests come back normal and there is no explanation with what is wrong with your child....or, is it more normal to be completely ticked when they actually find serious problems that need surgical repair that should have been discovered over a year ago? Well, in a nutshell....Kaden's not ok. We indeed found abnormalities today. So off an the roller coaster we go again. He has lesions in his lungs, a laryngeal cleft (where the trachea meets the epiglotis) that needs surgical repair, a mass pushing on his left lung (probable hiatal hernia) which will also need repair, and obvious signs that he is STILL battling chronic lung issues. Wooh! What does a parent even say to that? He's probably aspirating on his own spit they say? Well why in the world did it take someone this long to figure this out? To top it off, the anesthesiologist was awe-struck to see his autonomic dysfunction manifest through his respirations while under anesthesia! Ok now that I've vented about a long hard day...Thank you God for protecting our son today. Thank you friends for continued support and prayers. I will be sure to update again tomorrow after we've had the chance to process this news. I will try to be optimistic and strong in knowing that another surgery or two may help Kaden tremendously in the long run. For now as our dear friend Lisa would say "deep breaths and lot's of prayer". Will update again tomorrow when Kaden is more stable and comfortable. Interesting days to come.