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Thursday, August 11, 2011


Kaden's Status

Posted Aug 4, 2010 9:22am
Our little son is still fighting this battle. Kaden's blood pressure has been fluctuating quite a bit. He's very tired and sleeping long nights, and resting in the afternoon. He gave his night nurse a rough night with 8 episodes of apnea. She did an awesome job though, and took excellent care of him. It's such a blessing to know that there are a few nights a week that we can sleep peacefully and trust Kaden's nurses will take care of him. That being said, I wanted to reflect on a conversation I had a long time ago with my very dear friend Rebecca. She once asked me what I considered to be "luxuries" in this life. I went on and on about materialistic things and never once did I mention the things that matter the most. Rebecca has ministered to me a great deal about what is of importance in this life. As I continue my walk with God I realize more and more everyday that each and every person involved in our live's whether it be by phone, face to face, and even through websites....were all placed here for a specific reason. He has brought me a very specific circle of support in the flesh to do His work and guide my family along this difficult journey. I'm grateful.
God's plans may not always be what I want, but what He wants for me. This adventure with Kaden is very tiresome and we lack support from some of the people that we thought "should" be involved. We don't hear from them at all and we are starting to realize that their hearts might be good, but they aren't in God's plans for Kaden at this time. So again we face the "surrender and trust" piece of our walk. In order to surrender, we MUST give it all to our good Lord and remember His promises.
So I've decided to focus on one thought for now that I think is of the utmost importance in our lives. It is this....Friend or foe, relative or seemingly irrelevant, every person in our lives is a ministry opportunity. I once read that love must be sincere. A new friend said to us yesterday afternoon that "love is a choice". We will pray for those that we are distant from. Another friend said that we are like trees "we want to be deeply rooted in our faith and produce healthy, beautiful fruit for others, not wilted spoiled fruit that's fallen from the tree" because we are bitter about those that have distanced themselves by choice. I will try and be the good tree.
So I will continue to be joyful in hope,patient in affliction,and faithful in prayer, knowing that God is in control.
As for our little man...he's such a blessing. He is NOT a hardship. Every moment with him is an opportunity to learn and remember the innocence that we were intended to have. He is a teacher so to speak. Kaden reminds us to be humble, loving, forgiving, generous, and loyal. Kylee, Evan, and Brandon, are so amazing too. They are the best children anyone could ever ask for. Their other parents are so supportive and willing to do anything they can to help our children be at peace. I'm guilty of so many wrong-doings with my children. I get so focused and busy with tasks that I forget the little one's standing right there at my feet. I will try to focus more on that flaw as well. Our children are all growing up to serve in their daily lives and are the greatest gifts. Thank you friends for your wisdom and constant faith and helping me remember what exactly it is that I'm supposed to be doing right now with my life and reminding me what really matters. My judgement sure does get clouded sometimes and I start carrying on about things that simply don't matter.
A note to Kaden...
Thank you Kaden for reminding me daily of my purpose. Thank you for purifying my thoughts. Thank you for serving me and reminding me what it means to be a mommy. Your hugs, kisses and snuggles are the highlight of my day. Your gentle touch is like angel kisses and your sweet little voice is like beautiful music. Daddy and I will not give up on you. We will fight everyday to get you the help you need and search every avenue that stands before us. You are truly special and we are blessed to be your parents.
For those of you that are distant from Kaden or don't know him at all, I wish you would draw near to him. He brightens the lives of those around him.

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